Are you really sick?

More and more I am noticing that people sometimes dismiss my fibromyalgia and don’t believe that I am actually ill. It can be frustrating, especially as I am trying my best to be well – yet when I am ‘being well’ it seems difficult for people to believe that I am sick at all.

Here are three examples:

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Product Review – Splash Liquid Lipstick

Lipstick. Something I personally gave up with years ago. It lasts for as long as it takes me to walk down the stairs and finding a way to keep it on that didn’t take too long was almost impossible. Until now. As some of you will know from my New Year Inspirations for 2017 I wanted to learn more about makeup so I bought myself a Younique Presenters kit. Their Moodstruck Splash Liquid Lipstick has completely changed my mind about lipstick and for the last week, I have been proudly sporting beautifully, colourful lips.

So what is so different about it?

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New Year Inspirations 2017

I think everyone at some point in their life, creates a list of new year resolutions every January and at some point during February, the resolutions are out of the window. I am sometimes guilty of this too, but last year I managed to stick to all of my resolutions and this year I want to build on that success.

Obviously, my main goal in life at the moment is to feel better and I learned a long time ago that to be better when you have a condition such as Fibromyalgia, you have to approach it holistically and consistently. It’s not just about taking tablets or exercising for a bit. It’s about living a better way of life physically, mentally and spiritually … forever.

So here are my resolutions, or rather my inspirations for 2017.

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The Ultimate Fibromite Christmas Present Guide

As we get ever closer to the ‘most wonderful time of the year’, I am totally overwhelmed by the choices and options for presents. I have been asked numerous times what I would like for Christmas and I genuinely couldn’t think of anything specific. So I started to do a bit of research, looking into things that I might like to receive at Christmas and ended up developing into this very blog post.

So, if you have a Fibromite in your circle of friends or family and you would like to get them something awesome and thoughtful and incredibly perfect, for less than £20, then look no further than this list! Obviously, there will be some female bias, but I have tried to include items that are suitable for anyone. Please also note, that this is not a sponsored post and that all the items mentioned have been chosen because I love them and would like to receive them myself.

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Mindfulness For Health – Week 1 Wild Horses

mindfulness-for-health-introduction-1These are my experiences of the Mindfulness for Health course I recently completed. This article is not a substitute for attending a course yourself and will only give you a small insight into the course and its effects on my journey. The book that supports this course is available to purchase here. For more information on attending a course in Sheffield, see here.

It’s very likely that if you suffer from chronic pain, you have turned your pain into some sort of evil demon that you try to avoid and that you fear. Week 1 of the Mindfulness for Health course was all about reconnecting and making contact with your own body once again. But why would I want to reconnect with the painful body I am trapped within? Why would I want to listen to the pain screaming and actually acknowledge it? Surely ignoring it and denying it was the right thing to do?

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A Letter to Myself

a-letter-to-myself

A letter I wrote to myself on the final week of the Mindfulness for Health course, which Jane posted back to us. It arrived this morning.

Dear Emma,

Don’t be so hard on yourself. Life is often difficult, lonely and filled with pain, but it is also so much more than that. Take the time to notice the good and enjoy the pleasant.

The most important message to take from the mindfulness course is to be kind, mostly to myself, but also to others. Accept your limitations, pace yourself, rest, breathe, smile. Remember not to be angry with yourself or feel guilty, it is not your fault. Give others the benefit of the doubt when they are flakey, seem distant or just don’t take your needs or feelings into account. No one can understand your condition or how their actions impact on your health.

Take the time for self-care, meditate, move/exercise, relax, enjoy. Don’t feel guilty for looking after you.

Commit to yourself and your health. It’s important, YOU are important.

Continue to spread awareness and be a positive voice for Fibromyalgia. You can make a difference to your life, and to others. Be strong, be bold, be awesome.

With Love

Emma xxx

Fibromyalgia and the Five Stages of Grief

five-stages-of-grief

For a short while after my ‘diagnosis’ of Fibromyalgia, I felt relieved. I felt that finally the way I felt had a name and that meant I could start getting better. That feeling was short lived. A diagnosis of a chronic, life-long condition takes some getting your head around. You feel a range of emotions, but one of the strongest for me was loss. I was in the mid-30s and I was being told that from now onwards I would be constantly in pain, I would be fatigued more often than not and that this would continue for the rest of my life. What about all the things I planned to do? The hills I hadn’t had time to climb just yet, the games and fun I wanted to have with my daughter as she grew up, the career I wanted to pursue?

The loss of your former life, along with the loss of your future dreams and aspirations does bring with it the same feeling of loss you would experience when a loved one dies and so you do find yourself going through the five stages of grief, as identified by Dr. Elisabeth Kubler-Ross.

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Spoonie Survival Kits

spoonie-survival-kits

Earlier this year I stumbled upon an awesome project called Spoonie Survival Kits. The project aims to provide little bags of happiness for chronic illness sufferers, while also raising money for chronic illness charities.

The kits are made by volunteers with long-term health conditions and disabilities and then sold online, with 25% of sales money going back into the project and 75% going to chronic illness charities.

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Synergy Stone Heat Wave Massage Tools

synergy-stone

Earlier this year, my partner went on a business trip to Seattle and of course, while he was there, he took some time to do a little souvenir shopping. While in Pike Place Market, he stumbled upon a stall selling Synergy Stones and following a demo from the stallholder, he bought one for me [the Divine model].

Massage therapy can help to decrease pain and muscle aches, reduce stress and anxiety, and promote overall wellness and relaxation. Hot stones expand blood vessels, which encourages blood flow throughout the body and have a sedative effect that can relieve chronic pain, reduce stress and promote deep relaxation.

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A Fibro Friendly 10th Birthday Party?

a-fibro-friendly

As a mum with fibro, it’s sometimes really hard to rest and recover. Often, you just have to keep going and going to meet the needs of your child. Children are exhausting at the best of times, but when they are hyped up, full of sugar and you are trying to coordinate a group of them at a birthday party, it’s even more so.

My daughter’s birthday parties always bring back memories of the break-in we had 6 years ago and so they are always a challenge to get through, but add in the fibro and it’s a recipe for a full on flare fiasco. I always end up running about like an idiot, coordinating everything and everyone and am absolutely exhausted by the end of the party. While I love to see my daughter and her friends having a great time, it’s usually my health that is secondary.

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