Author: emma (Page 2 of 5)

Fibromyalgia and the Five Stages of Grief

five-stages-of-grief

For a short while after my ‘diagnosis’ of Fibromyalgia, I felt relieved. I felt that finally the way I felt had a name and that meant I could start getting better. That feeling was short lived. A diagnosis of a chronic, life-long condition takes some getting your head around. You feel a range of emotions, but one of the strongest for me was loss. I was in the mid-30s and I was being told that from now onwards I would be constantly in pain, I would be fatigued more often than not and that this would continue for the rest of my life. What about all the things I planned to do? The hills I hadn’t had time to climb just yet, the games and fun I wanted to have with my daughter as she grew up, the career I wanted to pursue?

The loss of your former life, along with the loss of your future dreams and aspirations does bring with it the same feeling of loss you would experience when a loved one dies and so you do find yourself going through the five stages of grief, as identified by Dr. Elisabeth Kubler-Ross.

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Spoonie Survival Kits

spoonie-survival-kits

Earlier this year I stumbled upon an awesome project called Spoonie Survival Kits. The project aims to provide little bags of happiness for chronic illness sufferers, while also raising money for chronic illness charities.

The kits are made by volunteers with long-term health conditions and disabilities and then sold online, with 25% of sales money going back into the project and 75% going to chronic illness charities.

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Synergy Stone Heat Wave Massage Tools

synergy-stone

Earlier this year, my partner went on a business trip to Seattle and of course, while he was there, he took some time to do a little souvenir shopping. While in Pike Place Market, he stumbled upon a stall selling Synergy Stones and following a demo from the stallholder, he bought one for me [the Divine model].

Massage therapy can help to decrease pain and muscle aches, reduce stress and anxiety, and promote overall wellness and relaxation. Hot stones expand blood vessels, which encourages blood flow throughout the body and have a sedative effect that can relieve chronic pain, reduce stress and promote deep relaxation.

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A Fibro Friendly 10th Birthday Party?

a-fibro-friendly

As a mum with fibro, it’s sometimes really hard to rest and recover. Often, you just have to keep going and going to meet the needs of your child. Children are exhausting at the best of times, but when they are hyped up, full of sugar and you are trying to coordinate a group of them at a birthday party, it’s even more so.

My daughter’s birthday parties always bring back memories of the break-in we had 6 years ago and so they are always a challenge to get through, but add in the fibro and it’s a recipe for a full on flare fiasco. I always end up running about like an idiot, coordinating everything and everyone and am absolutely exhausted by the end of the party. While I love to see my daughter and her friends having a great time, it’s usually my health that is secondary.

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Mindfulness for Health 8 Week Course

mindfulness-for-health-introduction

Back in September, I spotted a tweet about a Mindfulness for Health course that would be starting soon in Sheffield. I clicked on the link because Mindfulness is something I am really interested in, especially for pain management.

It turns out that the course was being run by 2 ladies [Jane and Debs] who were training to become Mindfulness course tutors with a company called Breathworks. It was to be held at Union Street, a fab co-working space in Sheffield city centre. The course on offer was a practice course so that Jane and Debs could complete their Mindfulness teacher training. It sounded just what I needed and so I signed up as soon as I sorted out the inevitable logistics when you work full-time and have a young child to sort out and bought the book that accompanied the course: Mindfulness for Health. A Practical Guide to Relieving Pain, Reducing Stress and Restoring Wellbeing.

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Six Years Ago

6-years-ago

Six years ago my daughter was having her 4th birthday party. My family had travelled up to Sheffield for the event and all her friends were having fun at the play centre. Towards the end of the party, I received a phone call from my partner who had popped back to the house to get ready for the family ‘after party’ we were going to have at home.

“There’s been a break-in. Someone has broken into the house”.

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A Sheffield Fibromite Launches New Website

new-website-poster

So, after much time and effort A Sheffield Fibromite finally has a new home. I’ve moved the site from Weebly to WordPress, rebranded the website, Facebook and Twitter and spent a lot of time working on the design and content.

Here are all the links you will need to keep up to date with the blog:

Website: asheffieldfibromite.co.uk

Facebook: www.facebook.com/asheffieldfibromite

Twitter: www.twitter.com/asheffieldfibro

If you would like to receive blog posts straight to your inbox you can sign up for my mailing list here:

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If you live in the Sheffield area and have Fibromyalgia, I have set up a private group. Please feel free to join here: www.facebook.com/groups/sheffieldfibromites/

A Virtual Stampede

herd-of-sheffield

Throughout the summer, Sheffield has been home to a massive herd of elephants. The herd have been raising money for Sheffield Children’s Hospital.

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​Magic Moments Of Mindfulness

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It can be easy to forget to stop sometimes; when I am up against a deadline at work, when I am trying to juggle my family and my chronic pain when a hundred and one thoughts are racing through my head and my anxiety kicks in.

A more mindful approach by paying more attention to the present moment, acknowledging my own thoughts and feelings and recognising the world around me, improves my mental well being and makes me more positive and productive.

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Surviving Bloodstock Music Festival with Fibromyalgia

surviving-boa

We’ve been going to Bloodstock for a good few years now, an annual pilgrimage that we look forward to every year. In 2014 though, I struggled. Having been diagnosed with Fibromyalgia at the end of 2013, I wasn’t sure exactly what impact it would have on my BOA experience or what I would need to do to compensate for my reduced energy and ongoing pain, while also trying to enjoy the festival. After experiencing the festival without making any provisions or allowances, I knew that in 2015 some things needed to change if I was to continue attending.

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