Category: Fibromyalgia (Page 1 of 2)

Review: The Gupta Amygdala Retraining January – April 2017

When you are told that a treatment is powerful, that it’s revolutionary and that it has helped hundreds of people around the world get their lives back, it’s not surprising to be a little skeptical.  How can someone have magically come up with a cure for Fibromyalgia that my GP hasn’t heard of?

I was given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.

Ashok Gupta claims exactly this with his Interactive DVD Home Study Course & Webinar Coaching Series which has been designed to help people recover from illnesses such as ME/CFS, Fibromyalgia, Multiple Chemical Sensitivities, Electrical Sensitivity and Associated Conditions which he believes stem from the Amygdala.

I spent the first 4 months of 2017 participating in this training course, watching the DVDs, reading the copious amounts of printed material and attending the weekly webinars and have found it incredibly useful.

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Make Fibromyalgia A Disability

Chesterfield-based Adrienne & Leeann Lakin both have fibromyalgia, as do their other sisters and their mum. Both started with symptoms in their late teens, but, as so often happens, it took much longer to be diagnosed.

Under the UK Equality Act, fibromyalgia is deemed as an impairment rather than a disability. So, in an attempt to secure more support, understanding and awareness along with better funding for research and care,  they started a petition to UK Parliament.

I recently had the opportunity to talk to the sisters about the petition and to find out a little more about their motivations, their aims and how we can pitch in and help out with the petition.

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‘The Whole Health Life’ Book Review

I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.

As part of my own battle to regain my health, I have been trying to look at my health and wellness as a whole package and make improvements to numerous elements of my life though diet, exercise, mindfulness and so on.  I was, therefore keen to review this particular book because it promised to offer a whole health approach to getting healthy, finding balance and living better … and it didn’t disappoint!

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Virtual Running

Anyone who follows the blog will know that I am desperate to be able to run a 5k without stopping … why?!  I’m not really sure, just feel like that is a great physical challenge and one that I could achieve over time. I am kinda stubborn and bloody minded and am determined not to let fibromyalgia dictate what I can and can’t do.

I have tried all sorts of ways to get that 5k including the Couch to 5K programs, but until recently, I was really struggling. The aim seemed like a never ending battle.

It’s well known, that having a running buddy helps to motivate and push you to achieve personal bests, but I don’t really have anyone locally I could run with, and those I do know who run, would run circles around me. That wouldn’t be motivational, it would just be demoralising. So what’s the answer?

Well, I recently discovered virtual running and I am officially hooked! Even my daughter has got involved!

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Are you really sick?

More and more I am noticing that people sometimes dismiss my fibromyalgia and don’t believe that I am actually ill. It can be frustrating, especially as I am trying my best to be well – yet when I am ‘being well’ it seems difficult for people to believe that I am sick at all.

Here are three examples:

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The Ultimate Fibromite Christmas Present Guide

As we get ever closer to the ‘most wonderful time of the year’, I am totally overwhelmed by the choices and options for presents. I have been asked numerous times what I would like for Christmas and I genuinely couldn’t think of anything specific. So I started to do a bit of research, looking into things that I might like to receive at Christmas and ended up developing into this very blog post.

So, if you have a Fibromite in your circle of friends or family and you would like to get them something awesome and thoughtful and incredibly perfect, for less than £20, then look no further than this list! Obviously, there will be some female bias, but I have tried to include items that are suitable for anyone. Please also note, that this is not a sponsored post and that all the items mentioned have been chosen because I love them and would like to receive them myself.

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A Letter to Myself

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A letter I wrote to myself on the final week of the Mindfulness for Health course, which Jane posted back to us. It arrived this morning.

Dear Emma,

Don’t be so hard on yourself. Life is often difficult, lonely and filled with pain, but it is also so much more than that. Take the time to notice the good and enjoy the pleasant.

The most important message to take from the mindfulness course is to be kind, mostly to myself, but also to others. Accept your limitations, pace yourself, rest, breathe, smile. Remember not to be angry with yourself or feel guilty, it is not your fault. Give others the benefit of the doubt when they are flakey, seem distant or just don’t take your needs or feelings into account. No one can understand your condition or how their actions impact on your health.

Take the time for self-care, meditate, move/exercise, relax, enjoy. Don’t feel guilty for looking after you.

Commit to yourself and your health. It’s important, YOU are important.

Continue to spread awareness and be a positive voice for Fibromyalgia. You can make a difference to your life, and to others. Be strong, be bold, be awesome.

With Love

Emma xxx

Fibromyalgia and the Five Stages of Grief

five-stages-of-grief

For a short while after my ‘diagnosis’ of Fibromyalgia, I felt relieved. I felt that finally the way I felt had a name and that meant I could start getting better. That feeling was short lived. A diagnosis of a chronic, life-long condition takes some getting your head around. You feel a range of emotions, but one of the strongest for me was loss. I was in the mid-30s and I was being told that from now onwards I would be constantly in pain, I would be fatigued more often than not and that this would continue for the rest of my life. What about all the things I planned to do? The hills I hadn’t had time to climb just yet, the games and fun I wanted to have with my daughter as she grew up, the career I wanted to pursue?

The loss of your former life, along with the loss of your future dreams and aspirations does bring with it the same feeling of loss you would experience when a loved one dies and so you do find yourself going through the five stages of grief, as identified by Dr. Elisabeth Kubler-Ross.

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Six Years Ago

6-years-ago

Six years ago my daughter was having her 4th birthday party. My family had travelled up to Sheffield for the event and all her friends were having fun at the play centre. Towards the end of the party, I received a phone call from my partner who had popped back to the house to get ready for the family ‘after party’ we were going to have at home.

“There’s been a break-in. Someone has broken into the house”.

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A Sheffield Fibromite Launches New Website

new-website-poster

So, after much time and effort A Sheffield Fibromite finally has a new home. I’ve moved the site from Weebly to WordPress, rebranded the website, Facebook and Twitter and spent a lot of time working on the design and content.

Here are all the links you will need to keep up to date with the blog:

Website: asheffieldfibromite.co.uk

Facebook: www.facebook.com/asheffieldfibromite

Twitter: www.twitter.com/asheffieldfibro

If you would like to receive blog posts straight to your inbox you can sign up for my mailing list here:

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If you live in the Sheffield area and have Fibromyalgia, I have set up a private group. Please feel free to join here: www.facebook.com/groups/sheffieldfibromites/

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