Tag: coping

Fibromyalgia and the Five Stages of Grief

five-stages-of-grief

For a short while after my ‘diagnosis’ of Fibromyalgia, I felt relieved. I felt that finally the way I felt had a name and that meant I could start getting better. That feeling was short lived. A diagnosis of a chronic, life-long condition takes some getting your head around. You feel a range of emotions, but one of the strongest for me was loss. I was in the mid-30s and I was being told that from now onwards I would be constantly in pain, I would be fatigued more often than not and that this would continue for the rest of my life. What about all the things I planned to do? The hills I hadn’t had time to climb just yet, the games and fun I wanted to have with my daughter as she grew up, the career I wanted to pursue?

The loss of your former life, along with the loss of your future dreams and aspirations does bring with it the same feeling of loss you would experience when a loved one dies and so you do find yourself going through the five stages of grief, as identified by Dr. Elisabeth Kubler-Ross.

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Surviving Bloodstock Music Festival with Fibromyalgia

surviving-boa

We’ve been going to Bloodstock for a good few years now, an annual pilgrimage that we look forward to every year. In 2014 though, I struggled. Having been diagnosed with Fibromyalgia at the end of 2013, I wasn’t sure exactly what impact it would have on my BOA experience or what I would need to do to compensate for my reduced energy and ongoing pain, while also trying to enjoy the festival. After experiencing the festival without making any provisions or allowances, I knew that in 2015 some things needed to change if I was to continue attending.

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